Sunday, May 22, 2022

Holy Setback Batman!

I'm not completely sure why I haven't written sooner. I haven't had a great run. I haven't even had a good run. But in all fairness, it hasn't been a bad run either. However, I've been caught in a horrible mess since at least Wednesday with a recurrent migraine. This migraine is weird. It started as a typical migraine on Wednesday. Then on Thursday, I had a right sided headache, followed by an aura... then the headache worsened.. it never goes that way. I never gre'set the aura after the headache. It's always either just an aura and no headache, or just a headache and no aura. The aura NEVER comes after the headache. The pain after the headache proved to be something I've never experienced before- it was bad. What made it more troublesome is that I was at work.. I got it to break, but the postdrome lingered- for literally days.

It's now Sunday. I'm still in status. I got another migraine yesterday.. I still have it. I can't break it. My brain is swirling something horrible. My equilibrium is so off. I can't think. My sense of taste is off and my hearing in my right ear is muffled. All of this is disabling, and there's so much more to it that I can't remember. It's frustrating! 

For instance, we had a seizure patient the other night and I gave Versed. When I went to document the drug, the computer had it listed as midalozam. I panicked because I feared I gave the wrong medication! I told my EMT that I screwed up because I gave Versed not midalozam! She stopped, looked at me perplexed and asked, "Patti, isn't midalozam "Versed"? God! I felt so stupid! Of course it is! I KNEW IT IS! I explained my brain fog. We laughed it off, but what if... what if I wasn't sure at the time I was giving it?

I don't like this feeling. I can't think. I can't function. Yesterday, I felt so badly I had to go to bed. This isn't me. I'm thankful I was off this weekend. I was going through my notes from the ENT- from September 2021 when she was putting me through all of the vestibular testing. She thinks a lot of this is from vestibular migraines. Makes sense! Is my broken brain vestibular migraines? Maybe it's NOT early dementia at all! Long COVID? Maybe? Maybe COVID made it worse? All I know is it's GOT to get better. I can't do this much longer. I want my brain back!

On a side note- I did miss a few days of my Trokendi... see, my insurance doesn't pay for it, so I have to get samples from the Dr... great, huh?

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