So I finally got my appointment with Dr. Reynolds yesterday at Duke Neurology. Dr Younus referred me to him for an extended EEG to rule out seizures. After an extensive conversation and exam, he does not believe I am having seizures. He wants further testing, to include a 24h EEG and neurocognitive testing. He said he thinks we are looking at either post covid cognitive issues or early onset dementia. He also believes there is an anxiety component. I do get more anxious than I ever did before, but that happens more when I cant function, not the other way around. Further, I am more anxious because I fear losing my job, my livelihood, my career. I fear losing my mind. I fear being abandoned by those I love when I no longer know who there are. I fear dying alone in a nursing home.
I got a call today and my neurocognitive testing isn’t until November! That is 7 months from now! I do not see Dr. Reynolds again until December. That is such a long time to suffer, to go without answers. How far can this progress before then? Surely, there has to be something I can do between now and then.
I called UNC Covid clinic today and thankfully I got an appt for Monday. Maybe they can help. Someone has to help. I got lost and confused yesterday trying to drive to Healing Transitions with a patient! That is unacceptable. I was so frustrated, so confused, so embarrassed. My head was spinning so badly. I cant work like that. Meanwhile, I have an EEG the end of the month.
I think its time to do some legal paperwork and get my affairs in order. I need to name beneficiaries and powers of attorneys. I want everything set while my brain is intact. I don’t know how long I have it. Better be safe, than sorry.
No comments:
Post a Comment